Planning for Sharing Human Participant Data

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Craft Your Own Consent Language

  1. Now spend some time with writing or editing your own consent script. Reassure your participants that their data is safe, but do not preclude the sharing of data. If working in a group, exchange scripts with a partner.
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    1. Read through your consent script (or that of your partner if working in a group) and consider some of the following:
      • Is the language easy to understand for the targe audience?
      • Does the script make clear that the data will be shared?
      • If there is going to be de-identification involved, do you explain what that entails? Do you avoid overpromising? Here is some language suggested by QDR.